Sensory kiosks recreate Multiple Sclerosis symptoms at Bengaluru event

In a first-of-its-kind initiative to raise awareness about Multiple Sclerosis (MS), an interactive experience, “Walk in my Shoes,” featuring sensory simulation kiosks designed to help participants understand the often invisible and debilitating symptoms of MS, was held in Bengaluru on Friday.

The event underlined the need for better care and policy support for those living with the condition. Roche India, in collaboration with the Multiple Sclerosis Society of India (MSSI), oragnised the event.

The simulation kiosks recreated a sensory experience of four of the most commonly occurring MS symptoms—loss of balance, motor impairment, blurry vision, and loss of sensitivity. A similar perception was devised through 2 kg leg bands, the snellen chart, and tremor-inducing wrist straps.

Rajan S., chief communication officer of Roche India, said such initiatives will help people who participate cultivate empathy towards MS patients.

“When you ask me when I was diagnosed with MS, I would say 15 years officially, but in reality, it has been 30 years, and it’s almost silent suffering,” said Arun Moha, vice president of MSSI, Bengaluru.  “Half the people suffering are not even aware of it,” he said.

“An MRI scan in India alone costs ₹30,000 to ₹40,000, and I take an injection twice, amounting to ₹1.6 lakh a year. While this is still not a cure, it makes one feel a little better than the day before,” Mr. Moha added.

Concerns over several policy hurdles to MS patients were also flagged at the event.