The everyday challenges with epilepsy most people don't see

Epilepsy is one of those conditions everyone has heard of, yet few truly understand. Despite major advances in medicine, it’s still wrapped in fear, myths, and unnecessary stigma.

Many people picture dramatic seizures, unaware that epilepsy is a common, manageable neurological disorder that affects millions. What individuals with epilepsy need most isn’t pity or panic—it’s awareness, empathy, and informed support. As Dr. Sachin Adukia, Senior Consultant Neurologist at Dr L H Hiranandani Hospital, Powai, explains, better understanding can transform lives. With the right treatment, compassion, and community awareness, people with epilepsy can thrive at school, work, and in everyday life.

1. Despite medical knowledge continuing to improve, why does epilepsy remain misunderstood?Epilepsy is regarded with more fear and superstition than it should be. Most people think of seizures as rare or frightening events rather than a manageable medical condition. The truth is, epilepsy is common and treatable. Awareness needs to start with empathy: understanding that with care and respect, a person with epilepsy can lead a full, productive life.

2. What are some of the most common myths and misconceptions?The biggest myths that people have regarding epilepsy are that it is contagious, caused by possession, or that people suffering from epilepsy cannot study, marry, or work. These ideas isolate patients and delay treatment. We need to replace fear with facts: epilepsy is a neurological disorder, not a social label. Everyone deserves dignity, not discrimination.3. How effective are anti-epileptic medications; what are their limits?Modern medicines control seizures in nearly 70% of people.

However, skipping doses, self-adjusting medication, or abrupt stopping of treatment is dangerous. Regular follow-ups and frank discussions with doctors are fundamental. Many side effects can be managed if they are reported on time. Technology, in the form of reminders on either apps or smartwatches, may help patients maintain their adherence.4. Is it possible to fully control or cure epilepsy?Yes, seizures can often be completely controlled. Some children outgrow epilepsy.

Others benefit from surgery or special diets. What matters is medical compliance and patience—never lose hope or stop treatment without medical advice.5. How do epilepsy-related challenges impact on mental health and daily life? The fear of having a seizure in public can engender anxiety and isolation. Talking helps. Confide in friends, teachers, or colleagues—they can support you during an episode and reduce fear. Compassion from others can make a huge difference. 6. What can schools, workplaces, and communities do? First aid for seizures is something that everyone should know: protect the head, turn the person onto one side, and never put anything in the mouth.

Stay until the seizure is over. Workplaces can offer flexible hours and acceptance. Schools can create days of awareness. Inclusion is not being kind; it's being responsible.