HRD Minister Nara Lokesh announces ‘Project Punarvika’ to support children fighting rare, crippling diseases

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Punarvika got a second chance at life, and it should be ensured for many more such children, says IT Minister Nara Lokesh. File | Photo Credit: ANI

A day after coming to the rescue of 11-month-old Punarvika, who is suffering with life-threatening genetic disorder called Spinal Muscular Atrophy, IT and HRD Minister Nara Lokesh on April 19 (Sunday) announced Project Punarvika, an initiative that would work on multiple fronts to help children fighting such crippling diseases.

A gene therapy injection costing a staggering ₹16 crore had to be administered to save the girl’s life. While Punarvika’s parents raised ₹10 crore in the form of donations, the balance ₹6 crore was contributed by Mr. Lokesh.

Published - April 19, 2026 07:09 pm IST

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